Why You Need Support Groups During Chronic Illness

If you’re suffering from arthritis, diabetes, cancer or another serious or chronic illness, participating in a support group can boost your emotional and even your physical well-being. Unfortunately, few people who could benefit from participating in a group do so.

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Some of us shy away from support groups, because we fear we’ll be too embarrassed to discuss our problems with strangers. Of course, members of a support group don’t remain strangers for long. Others view support groups as a source of emotional “hand-holding” for people who are weak or insecure. In fact, group participants spend little time feeling sorry for each other. They help one another face their problems head-on – and it really pays off.

Research Shows…

Breast cancer. In a study at Stanford University, 86 women with advanced (metastatic) breast cancer were randomly assigned to one of two groups. One group received standard medical care. The other group got identical care plus weekly sessions with a support group. At the end of the first year, women who had participated in the support group felt less anxious and depressed than the women who had not participated in the group.

They also reported half as much physical pain as the other women. Long-term follow-up showed something that was even more remarkable – that the support group participants lived an average of 18 months longer.

Malignant melanoma. University of California at Los Angeles researchers conducted a randomized trial of 80 melanoma patients. The 40 patients assigned to the control group received standard medical care. The other 40 patients in the experimental group got standard medical care, and they participated in weekly support group sessions. When tested six weeks later, the experimental group reported less anxiety and depression than the control group. Six years later, 10 members of the control group had died. Only three of the experimental group had died.

Diabetes. A University of Chicago study found that male diabetics who participated in support groups were less depressed than similar men who did not participate in support groups.

Heightened Immunity

What accounts for these dramatic findings? One theory is that the social support created by a group boosts the immune system by reducing the psychological stress associated with serious illness, and is known to interfere with immunity. This theory is supported by the UCLA study, which found unusually high levels of immune system cells called natural-killer cells in patients who participated in support groups.

Mutual Encouragement

Support group members also encourage each other to take better care of themselves physically. Some act as advocates for one another, making sure they get access to information and proper treatment. Groups fight isolation by giving members a chance to talk to people who understand what they’re going through – this at a time when family and friends may not know what to say. Finally, support groups help people find meaning in their suffering. Because the group gives them an opportunity to use their own experiences to help others, many patients find that some good has come from a bad situation.

Finding the Right Group

If your doctor or a hospital social worker is unable to steer you to a group, visit the American Self-Help Clearinghouse Web site at www.selfhelpgroups.og. Look for a group headed by a doctor, psychologist, nurse or social worker. Fees should be reasonably priced at no more than $40 per person per session. If you can’t find a group near you, don’t hesitate to start your own.

For Maximum Benefit

You’ll get the most out of your group by making a point to attend every session. This will help to build trust and a more comfortable environment. Don’t feel obliged to speak up. Realize, however, that you’ll get more from a group the more you talk about your issue, and the better you are at listening to others.

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